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June 8th, 2022

Conference "Toward a shared European data health infrastructure"

Conference ScanBalt : Toward a shared European data health infrastructure Conference ScanBalt : Toward a shared European data health infrastructure

At the term of the French presidency of the European Union*, let’s focus on the work and progress of the European Health Data Space ambition.

Genopole & ScanBalt - co-organisateurs conférencesGenopole and Scanbalt are honored to invite you to the event:
Toward a shared European data health infrastructure, interoperability, and valorization of the data.

An event that will take place on June 8 in person or remotely, a unique opportunity to share and exchange about the implementation of the European Health Data Space (EHDS).

3 sessions to:

1) Understand the state of the art, the ambition and the strategy around governance models with European and French representatives.

2) Discuss use cases and testimonies from health data users such as researchers, clinicians or health entrepreneurs.

3) Contribute to the reflections around the EHDS model by sharing expertise and recommendations from our ecosystem.

Place

In person :
Salle de conférence Elyséum
GIP GENOPOLE Campus 1
20 rue Henri Desbruères
91000 EVRY-COURCOURONNES – FRANCE

 

Program

9:30 – Opening Speech

David Bodet – Genopole director
Jaanus Pikani – Scanbalt Representative

9:45 – SESSION 1 : Toward a shared data space: Overview on state of the art, ambition, and strategy

– What initial vision for the European health data space? – TEHDAS – Joint Action Toward a European Health Data Space

– EHDS project evolution during the French presidency – Mario Jendrossek, Health Data Hub – European projects lead

– Focus on the 1+billion project: European common policy for sharing data infrastructures – Andres Metspalu, Estonian Genome Center of the University of Tartu


– Round table: What governance model for European cross-border co-operation in the use of health data?
Moderator: Alexis Biton – Genopole
Speakers : TEHDAS – Joint Action Toward a European Health Data Space, Andres Metspalu – Estonian Genome Center of the University of Tartu, Mario Jendrossek – Health Data Hub – European projects lead

11:05 – SESSION 2 : Practical views, perspectives and opportunities from and for Citizens, health professionals, researchers, and industry

– Access and use of patient data, to finally achieve the development of therapeutic solutions for rare diseases, innovative therapies. – AFM Telethon – Medical Actions Department

– Clinical user case in a European collaboration perspective – Charles Vesteghem, Head of Data integration, Department of Hematology, Aalborg University Hospital

– Perspective from BIOME Paris, Novartis France digital innovation lab, on European data space as an opportunitiy to scale start-ups accross Europe – Timothe Cynober, Project manager at BIOME (Novartis)


– Round table : EHDS to frame European health democracy: How to reach a transparent, safe, and trustful primary and secondary use of citizen’s health data.
Moderator: Dr. Laurent Pepin – Genopole
Speakers : Jean-François Deleuze – Centre National Recherche en Génomique Humaine (CNRGH), Peter Villax – Data4life Consorcio, Sandrine de Montgolfier – Professor of Epistemology and Ethics of Science – IRIS – Université Paris 13

12:35 – SESSION 3 : Technical/practical recommendation from clusters to connect European data infrastructures

– Preamble, and key aspects of Scanbalt joint positioning position paper – Oliver Stenzel, Novartis / Scanbalt representative

– Round table: Proposal analysis Toward EU integrated infrastructure ecosystem to allow secondary use of health data for research & development? – Scanbalt position paper contributors

* This event is not organised by the French Government. It is however authorised by the French Government to use the emblem of the French Presidency of the Council of the European Union.

French Presidency of the council of the European Union

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With the support from
Région île de France
Ministère de l'Enseignement supérieur et de la recherche AFM-Téléthon
Communauté d'agglomération Grand Paris Sud
Département de l'Essonne - Terre D'avenirs Ville d'Evry-Courcouronnes 2023 CEA Inserm Centre hospitalier Sud Francilien Université d'Evry - Paris Saclay Université PAris-Saclay SEM Genopole

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